Why Is This Important?

Cleft lip and cleft palate are among the more common birth defects. A cleft is an opening or split in the upper lip, the roof of the mouth (palate) or both. Cleft lip and cleft palate result when developing facial structures in an unborn baby don't close completely. Researchers believe that most cases of cleft lip and cleft palate are caused by an interaction of genetic and environmental factors. Genetic factors can cause clefts, either as an isolated defect or as part of a syndrome that includes clefting. In some cases, babies inherit a gene that makes them more likely to develop a cleft, and then an environmental trigger actually causes the cleft to occur. Environmental factors thought to contribute to clefting include: fetal exposure to cigarette smoke, alcohol, certain medications, illicit drugs and certain viruses. Other risk factors for clefting include: family history of clefts; maternal obesity; race (clefts are more common among American Indian and Asian children, and less common among Black children); and gender. Males are more likely to have a cleft lip with or without cleft palate, while females are more likely to have cleft palate without cleft lip.

Definition

Number of children born with cleft lip with cleft palate per 10,000 live births to women residing in New Jersey in a specified time interval.

Data Sources

• Birth Certificate Database, Office of Vital Statistics and Registry, New Jersey Department of Health
  (https://www.nj.gov/health/vital/)
• Early Identification and Monitoring Program, Division of Family Health Services, New Jersey Department of Health
  (https://www.nj.gov/health/fhs/eis/)

How the Measure is Calculated

Available Services

Early Intervention System: The New Jersey Early Intervention System (NJEIS), under the Division of Family Health Services, implements New Jersey's statewide system of services for infants and toddlers, birth to age three, with developmental delays or disabilities, and their families. The Department of Health (NJDOH) is appointed by the Governor as the state lead agency for the Early Intervention System. [http://www.nj.gov/health/fhs/eis] Since 2008, NJEIS has regionalized the system's point of entry for referral of children, birth to age three, with developmental delays and disabilities. Families and health care providers can call 1-888-653-4463 to refer a child to the NJEIS. Regional Cleft Lip/Palate Centers: Regional cleft lip/cleft palate centers are available in New Jersey to provide a comprehensive team approach to the care of infants and children with cleft lip, cleft palate, and craniofacial anomalies. Medical and health experts evaluate the child and develop long term care plans to correct or reduce craniofacial disorders, in collaboration with the child's primary physician and parents. For a list of centers and additional information: [http://www.nj.gov/health/fhs/specialpediatrics/craniofacial/] NJDOH Family Health Services Case Management Units: Each of New Jersey's 21 counties has a Special Child Health Services (SCHS) Case Management Unit. SCHS Case Managers, with parental consent, work with the child's parents and physicians to evaluate an affected child's strengths and needs; and develop an individual service plan for the child and family. Medical, educational, developmental, social and financial needs of the child and family are targeted. NJ Department of Health, Special Child Health and Early Intervention Services, PO Box 364, Trenton, NJ 08625-0364, Phone: (609) 984-0755, website: [http://www.state.nj.us/health/fhs/sch/] Catastrophic Illness Relief Fund: The Catastrophic Illness in Children Relief Fund is a financial assistance program for New Jersey families whose children have serious illnesses or conditions not covered by insurance, state or federal programs, or other funding sources. Contact the Catastrophic Illness in Children Relief Fund Program: 1-800-335-FUND (3863)

More Resources

Statewide and county profiles of the most prevalent birth defects can be found at, [http://www.nj.gov/health/fhs/bdr/datum/] Cleft Palate Foundation, [http://www.cleftline.org/], 1504 East Franklin Street, Suite 102, Chapel Hill, NC 27514-2820 USA, Ph: (919) 933-9044 , Fax: (919) 933-9604 Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, [http://www.cdc.gov/ncbddd/index.html] March of Dimes Foundation, 1275 Mamaroneck Avenue, White Plains, NY 10605, askus@marchofdimes.com, [http://www.marchofdimes.com], Tel: 914-428-7100, 888-MODIMES (663-4637), Fax: 914-428-8203